This is just the beginning of the stories that are being told from the parent's point of view. Parents of children, teenagers, and adults whose lives are affected by Rombergs Syndrome are welcomed to add their own stories. It is our firm belief that our best source of information is in the life experiences of our members. Only by sharing this information can we ever hope to totally understand Rombergs.
Alex's Story as told by his Mother, Noeline.
Elena's Story as told by her Mother, Maria Chavarria Lujan Castellon.
Jenny's Story as told by her Mum, Marita.
Kelley's Articles given to the Connection by her Mother, Donna.
Lindsay's Story as told by her parents, Dan and Lisa.
Loris' Story as told by her Mother, Rossella.(New Story January, 2012)
Matthew's Story as told by his Mother, Susan.
Michelle's Story as told by her Mother, Kathy.
My Daughter's Story as told by her Mother, Inge.
Paul's Story as told by his parent, Whit.
Rebecca's Story as told by her Mother, Sabine.
Svenja's Story as told by her parents, Irene and Markus.
All photos and text are the property of the families represented, and may not be used without their consent.
If anyone would like to post their children's stories here, please e-mail Marilyn at firstname.lastname@example.org.
Personal Stories of our adult members appear on our Personal Stories page.
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