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That it could have been triggered by trauma.
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Some say it's caused from the enviroments, something I was exsposed to. Some say it's because
I was a very sick kid and had a low immune system. Some say it was caused from the swimming
accident that triggered it.
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Lyme disease
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1. Dr. Tsai: Multifactoral autosomal dominant trait, with the multi-factors possibly being
predisposition of autoimmune disease, trauma (even very mild trauma), disease (virus or bacteria),
stress (physical or emotional) and/or hormones (either naturally occurring hormonal changes or
drug induced hormonal changes such as birth control pills)
2. Vascular constriction or degeneration
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Trauma
Genetically predisposed
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The rheumatologist I see says it is an autoimmune disease. He does not know what the trigger
is. I know some members believe it is neurological in origin but my doctor disagrees with that.
He seems sure it is autoimmune.
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An FNP (Family Nurse Practitioner) colleague said PRS is a gentic defect effecting the CNS (Central Nervous System).
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Inflammation sets off the body's response (something threw off the balanced biochemistry of the
system) and we need to reset it some way.
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My surgeon felt it is caused by some sort of interruption of the flow of blood to the affected area.
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Perhaps x-rays taken while my mother was pregnant with me during her 3rd trimester.
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My doctor has a theory that it was a connection with rabbits, but overall, there is not much known
about the disease.
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Trauma to the side of the face/head not affected by Rombergs.
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Same as mine, there is a relationship between the illness and the injury.
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One doctor said that some people were just more prone to getting it. No real cause was given.
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Possible autoimmune
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Trauma to the face during childhood
Pregnancy and childbirth
Overlapping autoimmune diseases
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I saw a speech pathologist a few years ago and she specializes in treating stroke patients with
facial weakness and asymmetry. She had pioneered the use of a microfacial stimulation unit or
special exercises in treatment of this condition and had been having success.
She came up with a theory on the cause of Rombergs - It was all to do with the blood flow to the
muscles. It is very complicated but at the time it made absolute sense to me but now I find it
hard to put it into words so I have attached a document (previously circulated) with her theory and
possible treatment. I did try the exercises but had such a weird reaction that I was wary of
following through, although she thought my reaction was a positive sign. The fact that she was in
a different State than me made it all very difficult. I tried to get doctors in my home State to follow
through but had no luck - I would love for a doctor who is familiar with Rombergs to explore this
theory and possible treatment.
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Not really a cause but that it is due to the secondary nervous system - but not quite sure why it
behaves as it does.
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Mayo Clinic: Related to thyroid problems and/or diseases. Our family has underactive thyroid
issues.
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Putting a crown on a tooth on PRS side triggered it from that very day. That's what doctors believe.
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