The Romberg's Connection 2009 Survey Results

Any Other Affected Family Members

Page 101. VI. Any Other Affected Family Members cont.: Diagnostic Information
1. At what age was the affected person diagnosed:
Age Responses
(1)		 % of Number responding
131
100%
Number responding = 1 / percent responding = 0.6% of the total respondents (143).




Page 101. VI. Any Other Affected Family Members cont.: Diagnostic Information
2. Please select the type of specialist who made the diagnosis:
Specialist Responses
(1)		 % of Number responding
Acupuncturist0
0%
Dentist0
0%
Dermatologist0
0%
Ear, Nose
and Throat		0
0%
General
Practitioner		0
0%
Geneticist0
0%
Neurologist0
0%
Opthamologist0
0%
Plastic
Surgeon		1
100%
Reconstructive
Surgeon		0
0%
Rheumatologist0
0%
Other (Specify) 0
0%
Number responding = 1 / percent responding = 0.6% of the total respondents (143).
Note: This was a multiple choice question.




Page 101. VI. Any Other Affected Family Members cont.: Diagnostic Information
3. Please select the procedure used to make the diagnosis:
Procedure Responses
(1)		 % of Number responding
ANA (Antinuclear
Antibody test for
level of inflammation)		0
0%
Biopsy for
bacteria		0
0%
Biopsy for
sclerotic content		0
0%
CAT (computed
axial tomography
(CAT or CT scan))		0
0%
MRI (magnetic
resonance imaging)		0
0%
Ultrasound0
0%
Visual
Diagnosis		1
100%
Other (Specify) 0
0%
Number responding = 1 / percent responding = 0.6% of the total respondents (143).
Note: This was a multiple choice question.




Page 101. VI. Any Other Affected Family Members cont.: Diagnostic Information
4. Comments for the Affected person's diagnostic information:
Count Comments
(0)
   
Number responding = 0 / percent responding = 0% of total respondents (143).


Disclaimer: Please be advised that everyone's experiences may be different and appropriate treatments may vary. Any medical information that you find on The Romberg's Connection website must NOT serve as a substitute for a consultation with one's personal physician. Our visitors should discuss any specific questions or concerns they may have about Rombergs with health care professionals who are familiar with the specifics of their special case.
As a support group, The Romberg's Connection is unable to offer medical advice to anyone.

Throughout this survey, when we use the term "Rombergs" or "Romberg" we are referring to: "Parry Romberg", "Parry Rombergs", "Parry Romberg Syndrome" and "PRS".

This is an unscientific survey designed to gather information from those who must deal with Rombergs on a daily basis.

Last Updated May 9, 2011