Responses
(18) |
Adderall used to combat fatigue.
Compazine used to combat nausea. |
| I have not had medication. |
| They were expensive, had side effects and there weren't any improvements. I look worse than before the treatment. |
| Darvocet and Vicodin for pain can take the hard edge off the pain, but not eliminate it. Aspirin and Tylenol are useless with Romberg pain. I'm allergic to Motrin and Codeine, so
don't have an opinion on the effectiveness of those for pain management. |
| It is very well documented that vitamin D, or lack of, plays a significant role in the autoimmune process. I feel that it is definitely worth the effort. It is inexpensive and easy
to find.
I very much feel that the Petadolex has changed my daughter's life. I felt that we were losing her to the pain of migraines and that the pain was sucking away her wonderful personality. It is not
cheap, but still very much worth the effort and money, and it is an excellent alternative to some of the prescription migraine drugs that she had tried.
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| It's so hard to measure effectiveness of medications with this disease. No way to tell if it would be worse if we didn't try meds. |
| I think it was worth trying treatments because you never know if it will work. The Methylprednisolone was very hard on the body but I had to try something. I don't think the
Methotrexate is working since the Rombergs continues to progress but the doctor (and my husband) wonder if the Methotrexate is working to some degree. Maybe the progression would have been worse if I
wasn't taking it. That is why I have continued to take it. |
| These medications have helped with my pain. |
| I can't say the disease stopped (atrophy) because of the drugs. I was on Methotrexate and Colchis at the same time so I can't say which of them worked, or both, or none of them...
the atrophy apparently ceased (but I also had PMMA grafts (poly methyl methacrylate)) that could have made it to stop), however now I have facial pain (maybe due to the PMMA!). But I found out
acupuncture that is working for the pain and hopefully to prevent ongoing atrophy. |
| At no time was any medication used for PRS only for Ulcerative Colitus. No doctor prescribed anything for PRS except surgery to remove 'core'. |
| Still in process of treatment, so it is hard to judge at this time - she has only started treatment December 2008. |
| Also used UVA photo chemotherapy which put disease on hold for a year. |
| My Dr. told me to take a baby aspirin every day. I don't take it for my PR. |
| Would do the same again for sure. |
| Five months after beginning of medication with Methotrexate, we could stop treatment with eye drops containing Cortisone. To treat the eye with Cortisone for long time will result in
cataract. |
| Yes, but keep in mind that I've only ever taken pain relief to treat symptoms and nothing to treat the disease as such. |
| I never really felt that these meds helped in any way, yet none of the medical personnel seemed open to my suggestions for alternative therapy, omega 3's, high protein diet, among
other suggestions.
Also when I suggested Methotrexate for the lesions, they felt it was too late to try to use that as her system was too fragile at this point. She ran out of hospital days after being hospitalized
for almost a year, so they shipped her to a nursing home, where she ended up with a huge decubitus ulcer and she eventually died at the young age of 39.
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| This was awful watching my child double her weight in just a couple months. It was terrible. She had trouble breathing, and devloped asthma, arthritis |