The Romberg's Connection 2009 Survey Results

Serious Infection

Page 64. IV. Triggers (page 1 of 2) cont.: Serious infection
1. Please describe serious infections of any kind prior to onset:
Responses
(12)
Staff infection as a child............... thumb surgery needed, chicken pox, measles and mumps........... I think.
At age 4, had a sore/boil on my head where my brother hit me with a little metal cap gun that became severely infected!
Bad food poisoning a few times within a year.
At birth while still in hospital, I caught staph - I had it all over my head and face.
Strep throat, measles, chicken pox, blood poisoning.
Epstein-Barr-Virus
Had atypical pnuemonia in early 2002, 8 months after 9/11. Quite ill for awhile.
Some weeks before onset we observed 2 small centers of inflammation (like mosquito bites) on the right jaw. Inflammations endured for longer time (4 weeks or maybe longer).
My four children all had chicken pox for a month about six weeks before I hit my head. I had never had chicken pox and never got any symptoms and at the time I wasn't tested for it. I got some virus just after I injured my head and was exhausted all the time and had headaches and joint aches. I was tested for glandular fever and Ross River fever and other similar things but seem to have anything. It took six months before I started to get back to normal again!
Strep throat carrier (as far as we know).
Not an infection, but wanted to mention that I had a serious asthma attack at age 18 months, which my mother blames for the PRS. I was in intensive care and came close to not making it during that asthma episode.
Prior to the initial issue of facial pain - child had severe chicken pox and affected side had a number of noticable marks on that side of the face.
Number responding = 12 / percent responding = 8% of total respondents (143).



Disclaimer: Please be advised that everyone's experiences may be different and appropriate treatments may vary. Any medical information that you find on The Romberg's Connection website must NOT serve as a substitute for a consultation with one's personal physician. Our visitors should discuss any specific questions or concerns they may have about Rombergs with health care professionals who are familiar with the specifics of their special case.
As a support group, The Romberg's Connection is unable to offer medical advice to anyone.

Throughout this survey, when we use the term "Rombergs" or "Romberg" we are referring to: "Parry Romberg", "Parry Rombergs", "Parry Romberg Syndrome" and "PRS".

This is an unscientific survey designed to gather information from those who must deal with Rombergs on a daily basis.