The Romberg's Connection 2009 Survey Results

Lyme Disease

Page 62. IV. Triggers (page 1 of 2) cont.: Lyme disease
1. Please comment on Lyme disease:
Prior to onset of PRS - maybe a few months after treated for Lyme.
Lyme disease was discoverd on age 7. After antibiotic: headaches milder and disappearance of tissue stopped.
Had a tick cut out of my right thigh in May 2004 -- had bulls eye, etc. Bulk of problems came after this, although photo shows spot on forehead in 2002.
Tested postivite for Lyme disease as an adult. Could have also been a false positive.
Never diagnosed with Lyme Disease, but bitten by tick which stayed in head 48 hours. Doctor said no Lyme disease-bearing ticks in Indiana so concluded I don't have it. Test inconclusive.
Number responding = 5 / percent responding = 3% of total respondents (143).

Disclaimer: Please be advised that everyone's experiences may be different and appropriate treatments may vary. Any medical information that you find on The Romberg's Connection website must NOT serve as a substitute for a consultation with one's personal physician. Our visitors should discuss any specific questions or concerns they may have about Rombergs with health care professionals who are familiar with the specifics of their special case.
As a support group, The Romberg's Connection is unable to offer medical advice to anyone.

Throughout this survey, when we use the term "Rombergs" or "Romberg" we are referring to: "Parry Romberg", "Parry Rombergs", "Parry Romberg Syndrome" and "PRS".

This is an unscientific survey designed to gather information from those who must deal with Rombergs on a daily basis.