Responses
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I notice when I am stressed, I get more headaches, migraines, and eye problems.
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I feel stress can bring on anything.
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Everything
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I lose my temper quickly sometimes it scares me I am afraid I will do something I will
regret later.... my face it just burns in that moment and I have a smarting pain
sometimes it changes it's color and it's red and my veins..... like they will blowup.
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I wonder if my stress has escalated the process of Rombergs (the atrophy). I am a full-
time student, work full-time, and juggle life in general.... so I wonder if that caused the
progression so quickly.
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I think the frustration of there not being adequate medical knowledge and treatment is
a major factor in Romberg related stress. The lack of knowledge and interest by
doctors is astonishing and frustrating. I go into a panic when I have to see a doctor
about my PRS symptoms because I am so often told I am not experiencing what I
say. This even though the doctors have never even heard of PRS, so how could they
know? The only doctor I have ever seen who knew anything about PRS was the
plastic surgeon who diagnosed me. Some of the worst are neurologists. Some of the
best are physician assistants — they at least are not dismissive and seem to want to
help and find out more.
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I get stressed whenever I notice my Rombergs is progressing. Other than that, life
pretty much goes on and I don't think about it. Also, I was under a lot of pressure at
work last year which seemed to speed up the progression.
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Seems to 'burn' when life gets tough!
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I don't get stressed from Rombergs but have the normal stresses of everyday life...
my Rombergs had been quiet for nearly six months and then some major family drama
involving a major car accident and my husband and myself separating it is now active
in a big way with my face tingling and itching constantly... though it is reducing as
things get sorted.
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Stress has a HUGE affect in this case.
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I'm scared for me and my children. I was never so anxious before as I am every day
now. In fact, I didn't know what anxiety really was until this came into our lives. How
do you not despair about what is or might be happening to you or your child when you
see the changes?
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I feel that it really gets my PRS going, but then again, it really affects my Lupus too!
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My daughter needs to find a niche with as little stress as possible. She is taking
medication for depression at this time as well, to my chagrin.
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When she becomes over tired or stressed she gets infections in her face. She is on
antibiotics on a daily basis to prevent these severe and painful outbreaks.
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