Responses
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PHYSICAL THERAPY IS ONGOING
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Only now and again very mild. Had a big problem after major micro vascular surgery.
Took a few weeks to get back to normal with the balance.
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It's not that bad. It's like I have anemia and my body sudenly relaxes and I have no
control of it but those episodes are very rare and short.
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My guess is that it is related to fatigue and headache.
Sometimes I feel like my brain is misfiring (it's hard to explain) and I feel like I am
going to tip over or am falling.
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Sometimes head feels like it's not connected to neck.
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I am constantly bumping into walls and doors.
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Difficulty with moving stairs in shopping centers. Takes longer to regain balance after
bending down or turning around.
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Has physical and Occupation Therapy at school 3 times per week and at a Children's
Hospital 1 time per week.
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Did have some issues earlier where I fell over a lot but these seem to have gone now.
Do have balance issues when I have a migraine.
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This happens if I get tired and run down - starts with running into walls and doors
progresses to tripping and then finally falling over.
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Most likely due to Chiari Malformation.
Trouble standing steady on both feet, especially with eyes closed.
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I haven't had therapy for this.
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Nothing major that I'm concerned with. Its more occasional at this time.
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My daughter has been diagnosed with vertigo and she had one very severe bout with it.
It impacted her balance.
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I didn't know that Rombergs might be responsible for my slight problems with balance,
I thought that it was due to anti-convulsives.
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After the orginal surgery.
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