The Romberg's Connection 2009 Survey Results

Morphea

Page 41. III. Associated Symptoms (page 3 of 4) cont.: Morphea
1. Please select the location of Morphea on the head:

Affected

Responses
(59)

% of Number responding

Cheek

50%

Chin

50%

Ear

10%

Eye lid

20%

Forehead

45%

Lower lip

20%

Upper lip

20%

Nose

20%

Scalp

35%

Temple

25%

Number responding = 20 / percent responding = 14% of total respondents (143).
Note: This was a multiple choice question.

Page 41. III. Associated Symptoms (page 3 of 4) cont.: Morphea
2. Comments for Morphea on the head:

Responses (3)
I did not know I had on my head until the doctors found it. There was no pain only hair loss and there was a small atrophy but without a hard tissue.
Maybe I am confused but it would be the same as the En coup de sabre ??
If by morphea, you mean pigmentation changes, I've got them on my face. They started on the forehead and then on both sides of cheeks and jaw. Dermatologist said hard to distinguish between condition and sun damage, but since most of these have appeared since I've been wearing high SPF, don't know what to think.

Number responding = 3 / percent responding = 2% of total respondents (143).

Page 41. III. Associated Symptoms (page 3 of 4) cont.: Morphea
3. Other locations of the body with Morphea:

Other locations

Responses
(26)

% of Number responding

Arm

40%

Back

70%

Chest

20%

Leg

40%

Neck

20%

Side

30%

Stomach

20%

Other (Specify)
Belly, Foot

20%

Number responding = 10 / percent responding = 7% of total respondents (143).
Note: This was a multiple choice question.

Page 41. III. Associated Symptoms (page 3 of 4) cont.: Morphea
4. Comments for Morphea on other locations of the body:

Responses (1)
It's located only on my face and head.

Number responding = 1 / percent responding = 0.7% of total respondents (143).

Page 41. III. Associated Symptoms (page 3 of 4) cont.: Morphea
5. General comments about Morphea:

Responses (2)
My morphea is almost level with a slight indent with numbness and color loss. Dryness and no hair growth.
The same I found in the book.......... hard tissue..... colored skin.... pain..... a permanent ache sensation ........ the pores of the skin are visible and bigger.

Number responding = 2 / percent responding = 1% of total respondents (143).

Disclaimer: Please be advised that everyone's experiences may be different and appropriate treatments may vary. Any medical information that you find on The Romberg's Connection website must NOT serve as a substitute for a consultation with one's personal physician. Our visitors should discuss any specific questions or concerns they may have about Rombergs with health care professionals who are familiar with the specifics of their special case.

As a support group, The Romberg's Connection is unable to offer medical advice to anyone.

Throughout this survey, when we use the term "Rombergs" or "Romberg" we are referring to: "Parry Romberg", "Parry Rombergs", "Parry Romberg Syndrome" and "PRS".

This is an unscientific survey designed to gather information from those who must deal with Rombergs on a daily basis.