The Romberg's Connection 2009 Survey Results

Forehead Affected

Page 34. III. Associated Symptoms (page 2 of 4) cont.: Forehead affected
1. Please select how the Forehead is affected:
Affected Responses
% of Number responding
Bone loss25
En coup de sabre
Protruding bone5
Thin skin45
Other (Specify) 8
Number responding = 69 / percent responding = 48% of total respondents (143).
Note: This was a multiple choice question.
This chart has a link to additional information.

Page 34. III. Associated Symptoms (page 2 of 4) cont.: Forehead affected
2. Comments for Forehead affected:
I have it mildly on both sides of my forehead.
Not as bad as the cheek.
I feel that the loss of subcutaneous tissue has made my bone appear to be protruding.
bone graft age 17
The protruding bone is in the area next to the indentation, so it just looks like its protruding. The skin is shiny but not discolored.
mild en coup de sabre.... thin skin in temple area
The skin on my forhead is extremely thin, the color is darker and the indent is severe, but all confined to the right side.
Two lines running down to eyebrow, slightly indented slightly pigmented. The rest of my left forehead has very thin skin so the blood vessels are visible through it. The skin has no visible pores or acne (the rest of my face does).
Sometimes the line does look white, other times bluish - so discoloration might also apply - her CT scan it appeared that you could slightly see the indention.
Left side of forehead is normal, right side is flat.
distinct lines or stripes
Left side of forehead has small indentation from Romberg's. I have had fat injections done and it helped out alot.
As I am rather overweight, it is very noticable that it is now just skin on bone.
small indent in tissue loss
I also have a dent above my eye brow and a receding hair line on the left side.
Not sure about bone loss... I think so?
only slightly and very recently
looks like dent
have had several surgeries to help correct this
Number responding = 19 / percent responding = 13% of total respondents (143).

Disclaimer: Please be advised that everyone's experiences may be different and appropriate treatments may vary. Any medical information that you find on The Romberg's Connection website must NOT serve as a substitute for a consultation with one's personal physician. Our visitors should discuss any specific questions or concerns they may have about Rombergs with health care professionals who are familiar with the specifics of their special case.
As a support group, The Romberg's Connection is unable to offer medical advice to anyone.

Throughout this survey, when we use the term "Rombergs" or "Romberg" we are referring to: "Parry Romberg", "Parry Rombergs", "Parry Romberg Syndrome" and "PRS".

This is an unscientific survey designed to gather information from those who must deal with Rombergs on a daily basis.