The Romberg's Connection 2009 Survey Results

Facial Paralysis or Weakness

Page 32. III. Associated Symptoms (page 2 of 4) cont.: Facial paralysis or weakness
1. Do you feel this facial paralysis or weakness is related to Rombergs?
Related Responses
% of Number responding
Number responding = 24 / percent responding = 17% of total respondents (143).

Page 32. III. Associated Symptoms (page 2 of 4) cont.: Facial paralysis or weakness
2. Comments for facial paralysis or weakness:
bite is not as strong in affected side
due to surgery
Gradual onset age 19-22 years, the only symptom of PRS I had at that age and the reason I was first diagnosed.
I only get it on the left side of my face.
I think there is some damage caused by my surgery and some caused directly from the PRS still being active.
mouth droops down on left side, smile no longer symmetrical
My facial paralysis could be a mild case of cerebral palsy due to premature birth - have had differing opinions on this.
My right side is weaker then my left side. If I talk for extended periods of time I find it difficult to move my jaw to form words. When I puff my cheeks out I am unable to puff the right side out as much as there doesn't feel like there is any muscle strength there.
She has problems with her jaw and severe deterioration of affected areas.
The eye muscle is paralyzed and does not allow the eye to look to the right, therefore I have to move my head to compensate.
The weakness was around the mouth where muscle had atrophied.
Number responding = 11 / percent responding = 8% of total respondents (143).

Disclaimer: Please be advised that everyone's experiences may be different and appropriate treatments may vary. Any medical information that you find on The Romberg's Connection website must NOT serve as a substitute for a consultation with one's personal physician. Our visitors should discuss any specific questions or concerns they may have about Rombergs with health care professionals who are familiar with the specifics of their special case.
As a support group, The Romberg's Connection is unable to offer medical advice to anyone.

Throughout this survey, when we use the term "Rombergs" or "Romberg" we are referring to: "Parry Romberg", "Parry Rombergs", "Parry Romberg Syndrome" and "PRS".

This is an unscientific survey designed to gather information from those who must deal with Rombergs on a daily basis.