The Romberg's Connection 2009 Survey Results

Other (Specify)

Page 24. III. Associated Symptoms (page 1 of 4) cont.: Ears affected
1. Please select how the ear is affected:
Other (Specify)

% of Total Responses	Responses (22)	Other - How the Ear is Affected
2%	1	slightly less cartilage
2%	1	Not sure on the ear: son had skin over eardrum get so tight it almost burst.
2%	1	protruding ear
2%	1	different size and shape
2%	1	Platform of ear is losing tissue.
2%	1	cartilage loss
2%	1	missing ear lobe
2%	1	outer ear tissue loss only
2%	1	external tragus and ear lobe
4%	2	atrophy of the outer ear
2%	1	off center
2%	1	fuzzy numbness in ear
4%	2	hole in eardrum
4%	2	Ear sticks out.
2%	1	not affected
6%	3	thin ear
2%	1	droopy

Disclaimer: Please be advised that everyone's experiences may be different and appropriate treatments may vary. Any medical information that you find on The Romberg's Connection website must NOT serve as a substitute for a consultation with one's personal physician. Our visitors should discuss any specific questions or concerns they may have about Rombergs with health care professionals who are familiar with the specifics of their special case.

As a support group, The Romberg's Connection is unable to offer medical advice to anyone.

Throughout this survey, when we use the term "Rombergs" or "Romberg" we are referring to: "Parry Romberg", "Parry Rombergs", "Parry Romberg Syndrome" and "PRS".

This is an unscientific survey designed to gather information from those who must deal with Rombergs on a daily basis.