103) August 9, 2026 - 09:46 Name: JESSICA ROLAND Location: USA E-mail:charlottholmes@gmail.com Comments: Living with Herpes is a daily struggle physically and emotionally. I was diagnosed in 2019, and over time, conventional treatments lost their effectiveness. My symptoms worsened, and the sense of hopelessness grew. In March 2025, as a last resort, i turned to Doc Erayo Herbal treatment. After completing 21 days treatment, the changes were remarkable, no more outbreaks and results came back negative after going for a blood test twice. For the first time in years, I'm not just coping but truly thriving. If you’re searching for a natural alternative, this may be the hope you've been waiting for. Please i urge you to contact him now through his email address: drerayoherbalhome@gmail.com or WhatsApp him on +2348151937428 and he is capable of curing HIV/AIDS, HPV, COLD SORE, CANCER of all kinds, DIABETES and so many other infections... WEBSITE; https://alternativeherbs.weebly.com
102) January 28, 2020 - 15:37 Name: Cheryl Location: NJ E-mail:Umbs@comcast.net Comments: Hello does anyone know a NJ or NYC doc who is very familiar with PRS? I have seen local doc for symptoms. Have many of the symptoms but neuro I saw isn’t familiar with it. They will run some bloodwork based on guesses of si Karl things to look for markers but I’m thinking I need an expert to read my mri and do proper exam. Thanks
101) November 25, 2019 - 13:59 Name: Becky Location: Uk E-mail:Becky@bluewelly.com Comments: Hi I posted a few years ago about suffering from brain lesions PRS related in 2016. Now fast forward to June 2019 I now have one on my spine and I now have been diagnosed with having relapsing remitting multiple sclerosis. My consultant says I have autoimmune disorders. I was diagnosed with PRS in 2010. I would like to know IS THRERE ANYONE ELSE IN THE WORLD ON HERE ...that has MS diagnosis. Any information would be great if you have similar Thank you Becky
100) April 26, 2019 - 07:46 Name: SURJIT PAL Location: INDIA E-mail:surjitbudhlada@rediffmail.com Comments: MY DAUGHTER SUFFERING FROM PRS LAST FIFTEEN YEAR .NOW SHE IS 23 YEAR OLD. SHE PASSAGE THROUGH SIX TIME FAT INJECTION TREATMENT SURGERY 50% RECOVERED THROUGH THIS .I AM ALSO WAITING FOR MORE ADVANCE TECNOLOGY OR BEST DOCTOR AND A FINANCIAL SUPPORT FROM ANY INSTITUTE FOR THIS . BECAUSE I PAID TOO MUCH MONEY IN SIX OPERATIONS
99) February 22, 2019 - 21:08 Name: Rosemarie Location: California, USA E-mail:Rosemariecervantes@gmail.com Comments:
98) February 22, 2017 - 03:50 Name: amro Location: istanbul E-mail:azzouz.amro@gmail.com Comments: hi all. Is there anyone who knows this clinic https://mcanhealth.com/en ?
97) October 24, 2016 - 10:57 Name: Vonda Location: Houston E-mail:ladyvee1969@yahoo.com Comments: Hello out there to all. Does anyone know of any doctors specializing in Parry Romberg Syndrome in Houston? I believe I have the syndrome, but my primary care physician tells me it is in my head and ignore it. I have Blue Cross PPO insurance.
Thanks :-)
96) September 13, 2016 - 03:34 Name: Becky Location: Uk E-mail:Becky@bluewelly.com Comments: Dear All, I have signed here before....a few years ago. This syndrome appears not to affecting me cosmetically( which has improved with surgery). But now with an inflammatory liesion😱 On right frontal lobe. Why, why why? Why now I ask my self!?? I had tonic clinic seizures as a result of this in July. MRI imaging picked liesion up. Got slight bigger in size. Admitted to Southampton hospital.. To start steroids. Then the rescanned me and liesion started to reduced in size. So most steroids given and loads of tests stated ir : lumber puncture. I just want this thing gone! I am on keppra for seizures. Is anyone on additional meds? There is no specialist in this PRS and this in fact scares me to death about what the future holds. I have heard a lot of comments about PRS is rare and we know 10% of PRS sufferes can develop seizures. Also been told there is very little literature about this or evidence to show effective treatment, so unsure how to treat this side of things. They keep comparing it to MS sufferes, which I understand the behaviour of liesion has similar characteristics...I just want answers and my life back. Can't drive due to siezures and my job appears to be on line due to being off sick and inability to drive as my job involves driving. Sorry for rant. Any info would be appreciated. Love to you all. Becky, 37, uk. PRS since 2010.
95) March 13, 2016 - 21:38 Name: Amy Location: Newcastle, NSW, AUSTRALIA E-mail:ahutchen@myune.edu.au Comments: Hi everyone, I'm searching for a doctor anywhere in NSW that has seen Parry-Roberg before. If anyone could help me out that would be amazing!
Thank You
94) February 24, 2016 - 12:09 Name: Ashley Location: hartsville.Tennessee E-mail:mommawood91@gmail.com Comments: I have parry Bromberg syndrome. Since I was 13 got finally got my answer when I was 22. I'm 24 now and trying to get started on help at vanderbilt university in tn. If there is anyone in tn please message me with any information you have with getting help in tn. Thanks
93) February 23, 2016 - 12:26 Name: Kayla Location: Minnesota E-mail:kaylamiriah@gmail.com Comments: I was finally given the PRS diagnosis in 2012 when I was 25 after dealing with the "dent" since puberty and migraines for 10 years. It was a bittersweet moment. Happy to finally know what was wrong with me, sad that there isn't anything they could do, and that they knew next to nothing about it. I finally decided to contact Dr. John Siebert about getting my dent and sunken eye fixed because I never even want to leave the house. Scheduled for surgery on June 20, 2016. Feeling very nervous, scared, excited and relieved. Anyone have any words of encouragement, advice, etc?
92) January 25, 2016 - 03:16 Name: Jessica Location: San Antonio E-mail:jessianngarciaq@gmail.com Comments: I've had over 50 plus reconstructive surgeries and procedures. Now I'm 45 and would like to know if here are other PRS patients seeking medical treatment from Dr. John Seibert, the leading expert in PRS reconstruction procedures?
91) January 4, 2016 - 12:22 Name: Amy Location: Bayonne, NJ E-mail:agarrett2887@gmail.com Comments: I have been experiencing physical symptoms on the left side of my face that are similar to those associated with Parry Romberg Syndrome. It started when I was about 18. I am now 28 and I feel my symptoms have gotten significantly worse. I was wondering if anyone one knows of any doctors in New Jersey who specialize in parry romberg syndrome and can help diagnose my condition? I cannot seem to find any doctors who are familiar with parry romberg syndrome in NJ.
90) November 24, 2015 - 06:01 Name: Phillip Location: california E-mail:cabusasp@gmail.com Comments: spouse has PRS
89) June 9, 2014 - 21:28 Name: Kathy Location: Sacramento, CA E-mail:k.jennings.graphics@gmail.com Comments: I am going to be very brief instead of telling this horrible story because right now who knows there may be repercussions. I am looking for a retired Postal Worker with P.R. or a similar HFM problem who was misdiagnosed as TMJ, had orthognastic surgery but not the follow up soft tissue surgery. I truly feel your pain and frustration, please e-mail me back, I am desperately looking for you, we both started out in another system, and now, are both in another. If you read this you will remember me.... I am not willing to name the institutions, but I believer there may be more than afew of us. May God watch over us all.
Name: JESSICA ROLAND
Location: USA
E-mail: charlottholmes@gmail.com
Comments:
Living with Herpes is a daily struggle physically and emotionally. I was diagnosed in 2019, and over time, conventional treatments lost their effectiveness. My symptoms worsened, and the sense of hopelessness grew. In March 2025, as a last resort, i turned to Doc Erayo Herbal treatment. After completing 21 days treatment, the changes were remarkable, no more outbreaks and results came back negative after going for a blood test twice. For the first time in years, I'm not just coping but truly thriving. If you’re searching for a natural alternative, this may be the hope you've been waiting for. Please i urge you to contact him now through his email address: drerayoherbalhome@gmail.com or WhatsApp him on +2348151937428 and he is capable of curing HIV/AIDS, HPV, COLD SORE, CANCER of all kinds, DIABETES and so many other infections...
WEBSITE; https://alternativeherbs.weebly.com