15) March 31, 2024 - 21:24 Name: Steph Location: USA E-mail:hereswhatuwant@gmail.com Comments: I believe I have a mild form of Romberg syndrome. Began to notice it around age 30. Since then I've noticed similar features in other people. Perhaps if the milder form were included with the more severe syndrome there would be more study on it.
14) January 1, 2024 - 12:57 Name: Marilyn & Gerri Location: Iowa E-mail:rombergs@hotmail.com Comments: To our Romberg's Connection family, We wish you a Happy New Year. May you have good health. Stay safe & well. Marilyn & Gerri
13) June 15, 2022 - 10:28 Name: Tiziana Location: Malta E-mail:tizianamic303@gmail.com Comments:
11) November 10, 2021 - 06:36 Name: Linda Location: New York, USA E-mail:lindab9apres@gmail.com Comments:
10) January 1, 2021 - 19:21 Name: Marilyn Location: Iowa USA E-mail:rombergs@hotmail.com Comments: Hi Everyone, We hope 2021 will be a better year for all of us. Stay safe & well. Marilyn
9) May 20, 2020 - 22:17 Name: Heather Location: Australia E-mail:hfoley67@hotmail.com Comments: Hi, I’ve had numerous surgeries for PRS. 6 years ago I had 2 lower teeth extracted taking bone (unbeknown time me) on my affected side. As a result, I’ve had my TMJ removed and had that side of my jaw removed and replaced with bone from my fibula and titanium. Drs are saying it’s related to PRS, even thought Drs told me it had ‘burnt out’ in 2007. Has anyone else had jaw issues?
8) September 24, 2019 - 11:53 Name: Marilyn Location: Iowa E-mail:rombergs@hotmail.com Comments: Yosef, Thanks for signing our Guest Book. If you would like to join our group, please contact me at rombergs@hotmail.com You are not alone in having this disorder
7) September 24, 2019 - 11:10 Name: Yosef Location: NJ E-mail: Comments: I have this disease too. Just checking out this site.
6) August 27, 2019 - 22:12 Name: Raul Location: Los Angeles ca E-mail:maelka1971@att.net Comments: Acabo de ser diagnosticado con este síndrome y no se que hacer ni si existe un lugar donde se pueda tratar esta enfermedad, si alguien me pudiera orientar ,todo esto es nuevo para mi, muchas gracias.
5) August 26, 2019 - 23:43 Name: Sara Location: Bridgewater, Massachusetts, USA E-mail:sarinhadebem@hotmail.com Comments: I Have been diagnosed with Parry Romberg syndrom 7 years ago.
4) April 28, 2019 - 11:22 Name: Greg Location: Idaho E-mail: Comments: Good Morning Terry. :)
I wanted to get on here and wish you a happy birthday. I hope you still remember just how much you are loved. You are still an amazing man.
Your Brother, Greg
3) November 1, 2018 - 13:09 Name: Ms. Scott Location: Switzerland E-mail:asassy55@hotmail.com Comments: None
2) June 12, 2018 - 12:07 Name: Marilyn Location: Iowa, USA E-mail:rombergs@hotmail.com Comments: Eduardo, Parece haver um problema com o seu endereço de e-mail. Por favor, entre em contato conosco novamente. Nós gostaríamos de ser úteis para Felipe.
1) January 1, 2018 - 10:58 Name: Marilyn Location: Iowa E-mail:rombergs@hotmail.com Comments: Happy New Year to all our Romberg's family! May the New Year be kind to you with many good times and good health!
Name: Steph
Location: USA
E-mail: hereswhatuwant@gmail.com
Comments:
I believe I have a mild form of Romberg syndrome. Began to notice it around age 30. Since then I've noticed similar features in other people. Perhaps if the milder form were included with the more severe syndrome there would be more study on it.