8) October 16, 2017 - 09:52
Name: CYNTHIA Location: HOUSTON , TEXAS E-mail: firstname.lastname@example.org Comments: I was communicating with the organization before but loss touch. It's been about 10 years. I was lost for a while but I am back!
7) October 9, 2017 - 07:59
Name: ashley Location: Hartsville, tn 37074 USA E-mail: email@example.com Comments: When I started noticing a different in my face was 2005 and now it's 2017 and I have way more problems and sideffects now. My migraine dr is the one that disnoiced me in 2010. After I have had 5 surgery on my jaw to put a inplan on my jaw bone. That only helps with looks. An can help if I even have a in packed on it. I want to find a Dr who understand this rare disease but haven a hard time finding anyone in Tennessee.
6) March 15, 2017 - 01:39
Name: Araceli Location: Washinton USA E-mail: firstname.lastname@example.org Comments: My daughter has been recently diagnosed with Parry Romberg.
5) February 9, 2017 - 03:05
Name: Caroline Location: Nottingham, UK E-mail: email@example.com Comments: Hello from the UK. A short background - I've been noticing changes in the left side of my face over the last 8 - 10 years, and late last year started to wonder what was going on and whether it would continue or stop. Yesterday I saw a consultant who confirmed I have mild PRS, and gave me options for fat transfer surgery etc. Not quite what I was expecting from the week of my 38th Birthday!
4) January 18, 2017 - 17:45
Name: Heather Location: Newcastle Upon Tyne. England. E-mail: firstname.lastname@example.org Comments: Along with PRS which has only occurred in the last couple of years, I have Sceleroderma en corp de sabre.
3) January 18, 2017 - 17:39
Name: Heather Location: Newcastle Upon Tyne. England. E-mail: email@example.com Comments: I have been diagnosed with PRS in November 2016 & I will be receiving Chemotherapy in February. I am 42years old.
2) January 2, 2017 - 19:00
Name: Ensieh Location: Beverly Hills, CA E-mail: firstname.lastname@example.org Comments: I would like to join the group/email list. My daughter has been recently diagnosed with Parry Romberg.
1) January 1, 2017 - 10:53
Name: Marilyn Location: Iowa, USA E-mail: email@example.com Comments: Happy New Year to all our Romberg's family! May the New Year be kind to you.