10) November 25, 2015 - 13:43
Name: Alexandra Location: New Jersey E-mail: Alasan123@aol.com Comments: I have had PRS since the age of 6. It is great to have this group and if anyone wants to email in the area feel free! :)
8) November 23, 2015 - 13:50
Name: Ashley Location: Indiana E-mail: Shlychstr1492@yahoo.com Comments: I'm 20 years old and was just diagnosed. I noticed the atrophy at 15 but was too embarrassed to talk to anyone about it until now. I'd love to make some friends who understand exactly what I'm going through so please feel free to email me!
7) November 19, 2015 - 19:00
Name: Philip Ryan Location: Lebanon Kentucky E-mail: firstname.lastname@example.org Comments: I am pretty sure I have joined, or are in the process of joining, but just wanted to sign guest book as well.... Glad someone has taken the time to create such a support group for this rare disfiguring disease. Thx
6) September 17, 2015 - 07:08
Name: graeme Location: mullaway Australia E-mail: email@example.com Comments: very useful rescourse,when my daughter was diagnosed in the 70's there were was nowhere to get any imformation
5) September 4, 2015 - 20:01
Name: Neven Location: Serbia E-mail: firstname.lastname@example.org Comments: Hi i just find out that i have Peri-Romberg sindrom
4) January 8, 2015 - 14:09
Name: tatiana Location: romania E-mail: email@example.com Comments:
3) January 6, 2015 - 13:37
Name: Marilyn Location: Iowa E-mail: firstname.lastname@example.org Comments: Emmi, Please contact me with your e-mail address. Thanks.
2) January 6, 2015 - 13:28
Name: Emmi Location: Finland E-mail: Comments: Is there anyone from Finland with PRS? I'm 26 year old women and diagnosed when I was maybe 4 or 5 years old. I have had multiple surgeries since then and next one coming in this spring. I'd like to talk with someone about their experiences, because I don't know anyone else with this kind of disease.. I'm sorry for you guys that you too have to suffer with this.
1) January 1, 2015 - 09:35
Name: Marilyn Location: Iowa E-mail: email@example.com Comments: Happy New Year Everyone! May you have a happy and healthy 2015!