The Romberg's Connection Guestbook

10) January 1, 2021 - 19:21
Name: Marilyn
Location: Iowa USA
E-mail:
Comments:
Hi Everyone, We hope 2021 will be a better year for all of us. Stay safe & well. Marilyn
9) May 20, 2020 - 22:17
Name: Heather
Location: Australia
E-mail:
Comments:
Hi,
I’ve had numerous surgeries for PRS.
6 years ago I had 2 lower teeth extracted taking bone (unbeknown time me) on my affected side.
As a result, I’ve had my TMJ removed and had that side of my jaw removed and replaced with bone from my fibula and titanium.
Drs are saying it’s related to PRS, even thought Drs told me it had ‘burnt out’ in 2007.
Has anyone else had jaw issues?

8) September 24, 2019 - 11:53
Name: Marilyn
Location: Iowa
E-mail:
Comments:
Yosef,
Thanks for signing our Guest Book. If you would like to join our group, please contact me at rombergs@hotmail.com
You are not alone in having this disorder

7) September 24, 2019 - 11:10
Name: Yosef
Location: NJ
E-mail:
Comments:
I have this disease too. Just checking out this site.
6) August 27, 2019 - 22:12
Name: Raul
Location: Los Angeles ca
E-mail:
Comments:
Acabo de ser diagnosticado con este síndrome y no se que hacer ni si existe un lugar donde se pueda tratar esta enfermedad, si alguien me pudiera orientar ,todo esto es nuevo para mi, muchas gracias.
5) August 26, 2019 - 23:43
Name: Sara
Location: Bridgewater, Massachusetts, USA
E-mail:
Comments:
I Have been diagnosed with Parry Romberg syndrom 7 years ago.
4) April 28, 2019 - 11:22
Name: Greg
Location: Idaho
E-mail:
Comments:
Good Morning Terry. :)

I wanted to get on here and wish you a happy birthday. I hope you still remember just how much you are loved. You are still an amazing man.

Your Brother, Greg

3) November 1, 2018 - 13:09
Name: Ms. Scott
Location: Switzerland
E-mail:
Comments:
None
2) June 12, 2018 - 12:07
Name: Marilyn
Location: Iowa, USA
E-mail:
Comments:
Eduardo,
Parece haver um problema com o seu endereço de e-mail. Por favor, entre em contato conosco novamente. Nós gostaríamos de ser úteis para Felipe.

1) January 1, 2018 - 10:58
Name: Marilyn
Location: Iowa
E-mail:
Comments:
Happy New Year to all our Romberg's family! May the New Year be kind to you with many good times and good health!


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