6) March 15, 2017 - 01:39 Name: Araceli Location: Washinton USA E-mail:email@example.com Comments: My daughter has been recently diagnosed with Parry Romberg.
5) February 9, 2017 - 03:05 Name: Caroline Location: Nottingham, UK E-mail:firstname.lastname@example.org Comments: Hello from the UK. A short background - I've been noticing changes in the left side of my face over the last 8 - 10 years, and late last year started to wonder what was going on and whether it would continue or stop. Yesterday I saw a consultant who confirmed I have mild PRS, and gave me options for fat transfer surgery etc. Not quite what I was expecting from the week of my 38th Birthday!
4) January 18, 2017 - 17:45 Name: Heather Location: Newcastle Upon Tyne. England. E-mail:email@example.com Comments: Along with PRS which has only occurred in the last couple of years, I have Sceleroderma en corp de sabre.
3) January 18, 2017 - 17:39 Name: Heather Location: Newcastle Upon Tyne. England. E-mail:firstname.lastname@example.org Comments: I have been diagnosed with PRS in November 2016 & I will be receiving Chemotherapy in February. I am 42years old.
2) January 2, 2017 - 19:00 Name: Ensieh Location: Beverly Hills, CA E-mail:email@example.com Comments: I would like to join the group/email list. My daughter has been recently diagnosed with Parry Romberg.
1) January 1, 2017 - 10:53 Name: Marilyn Location: Iowa, USA E-mail:firstname.lastname@example.org Comments: Happy New Year to all our Romberg's family! May the New Year be kind to you.